Lily's Garden - Weeding Out Leukemia

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Lily's Story

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Lily's symptoms began in mid-November 2008 when Lily was seven years old and in second grade.  The most severe symptom was intermittent back and leg pains.  Over the course of two weeks she saw her pediatrician and had two emergency room visits.  Each time the diagnosis was either a bladder/kidney infection or a pulled muscle.  She was given antibiotics.  The pediatrician and the emergency room doctors initially dismissed her pain as a pulled muscle from gymnastics. At one point they thought she might have a kidney stone, and a CT scan was done to rule that out.  The emergency room doctor told the family that they had "ruled out the bad stuff."  Though she had many tests and saw several doctors,up until December 1st, no blood tests were done.  In addition to the pain, she also grew quite pale and was fatigued easily.

On the Monday after Thanksgiving, December 1st, when the pain didn't abate and she started running a fever, their pediatrician had them come in.  Concerned by Lily's continued symptoms of fatigue, fever, pale skin, dark circles under eyes, and pain, they decided to do a blood test.
 
When the doctor looked at the results, she sent the nurse to play with Lily so that her mom could come to a private room to talk with the doctor.  She said she was 90% certain Lily had leukemia, and for them to take her immediately to Vanderbilt Children's Hospital.  Later that night, December 1, 2008, the definitive diagnosis was given.  Lily had leukemia - Pre-B acute lymphocytic leukemia.